From the MS CCSVI UK Webiste:
"The aim of MS-CCSVI-UK is to raise UK awareness of CCSVI and its potential influence on Multiple Sclerosis and to support the commissioning of research in the UK, to prove or disprove Prof. Zamboni's hypothesis.
Making use of the power of the internet to contact people and mobilising them to lend their voice to this cause we hope to bring Chronic Cerebro-Spinal Venous Insufficiency (CCSVI) to the attention of the government and politicians, the medical profession and MS support systems, the press and the media. We do not know what the results of the research will show, but until trials take place people impacted by MS will feel as though they are being ignored. A large number of MS sufferers feel, maybe even know that this theory makes more sense than the theory of autoimmunity. And considering the evidence available so far they are probably right. But probably is not good enough."
You can register to join their forum on their website: http://www.ms-ccsvi-uk.org/home/home.html