Tuesday, 31 August 2010

Chronic cerebrospinal venous insufficiency (CCSVI) found in 97.1% of patients

From the MSRC - article published 31st August 2010 Euromedic Specialist Clinics.

Correlation of localization and severity of extracranial venous lesions with clinical status of multiple sclerosis
Background. Chronic cerebrospinal venous insufficiency is suspected to play a role in pathogenesis of multiple sclerosis. For more click here and scroll down.

MS activity alters with seasons US researches say.

From the BBC:
The severity of multiple sclerosis (MS) may change with the seasons, say US researchers.
Brain scans of patients compared with weather patterns at the time showed higher levels of disease activity in the spring and summer.

For more click here.

JK Rowling gives £10m to MS Centre in Scotland

From the BBC:
Author JK Rowling has donated £10m to the University of Edinburgh to set up a multiple sclerosis research clinic.

To read article click here.

Thursday, 26 August 2010

On 24 August, The Independent included a supplement about multiple sclerosis.

The fifteen page supplement included items on living with MS, treatments and tips.

For more click here

History of the MS Trust

Thought you might be interested to read about the History of the MS Trust who were formed after Action and Research for MS (ARMS) disbanded as a national charity in 1993. The MS Therapy Centres were originally ARMS, it's wonderful to see how the organisations have evolved over the years with thanks to the dedication of so many people!

Click here to read article

Wednesday, 25 August 2010

Take part in a research project and be rewarded with £120!

The Patients Voice is running a new study with men who suffer from Primary Progressive Multiple Sclerosis. The research will take the form of an hour long interview in the comfort of your own home. If you take part you will be rewarded with £120 each to thank you for your time and effort.To qualify you will need to meet, at least, the following criteria:-· Have been diagnosed with primary progressive MS· Aged between 18 and 50.

Visit their webisite here.

Essential Health Clinic Update -CCSVI

CCSVI screening is now in full swing at the Essential Health Clinic in Glasgow and we are making significant progress towards carrying out the first intervention procedures for CCSVI in the UK.   Read update here.

Tuesday, 24 August 2010

University of Oxford - Gene study supports link between vitamin D deficiency and disease

The extent to which vitamin D deficiency may increase susceptibility to a wide range of diseases is highlighted in a new study led by Oxford University.
Scientists have mapped the points at which vitamin D interacts with our DNA – and identified over 200 genes directly influenced by vitamin D. The results are published in the journal Genome Research.

Read full article here

Nova Scotia premier supports clinical trial on controversial MS treatment

From the MSRC:

Nova Scotia's premier has added his voice to a growing chorus of support for a national clinical trial for a controversial treatment for multiple sclerosis.

To read full article click here and scroll down the page.

PTP-PEST discovery could impact treatment of Multiple Sclerosis

From the MSRC:
The internationally-renowned scientific journal Immunity, from the Cell Press group, published online recently, and will publish in its August 27 print issue, the results of a study conducted by a team of researchers led by Dr. Andre Veillette, Director of the Molecular Oncology research unit at the Institut de recherches cliniques de Montreal (IRCM).

Their scientific breakthrough could have an impact on the treatment of multiple sclerosis and other autoimmune diseases, which affect tens of thousands of Canadians.  For more click here.

Help to make the benefits system fairer

From the MS Society:

Take 15 minutes to make the benefits system fairer for people with MS

We've joined a large group of charities to do a major surveyto gather evidence on the impact changes to benefits like Incapacity Benefit, Disability Living Allowance and Local Housing Allowance is having on people with disabilities and long-term conditions. Your help is crucial in our campaign to make the benefits system fairer for people with MS.  For more click here

Dare we mention Christmas yet?!!!

Order your personalised "Christmas" Cards and support the Berkshire MS Therapy Centre!! Don't forget to tell your facebook family and friends! Thanks for your support :)

To order your Christmas Cards click here.

MS and arthritis may be linked to lack of sun, say scientists

From the Guardian 23rd August 2010.

Insufficient exposure to sunshine, resulting in low levels of vitamin D, could play a part in a wide-range of diseases, from multiple sclerosis to rheumatoid arthritis, type 1 diabetes, some cancers and even dementia, scientists say today.

For more click here.

BBC Radio 4 Today Programme - Connection between Vitamin D & MS

New research has revealed why some people are more susceptible to diseases such as multiple sclerosis.
Professor of Clinical Neurology, Dr George Ebers explains how some genes are regulated by the vitamin D.

To listen to the 5 minute interview click here.

CCSVI Converence 30th October 2010

The Essential Health Clinic - CCSVI - The way forward
Updates on the conference details will be posted here as we get more information.

October 29th 2010 - Doctors Day, for Medical professionals only.
October 30th 2010 - Public Day, for anyone interested in CCSVI and the way forward.

For more details click here.

Wednesday, 18 August 2010


EMS Research Ltd is currently conducting a study among Relapsing/Remitting MS patients. We would like to hear your opinions about a new auto-injector, we are offering £20 to everyone who completes a 5-10 minute interview with us. This payment can be donated to a charity if you wish.

We will be conducting these interviews at the Therapy Centre in Reading in the next couple of weeks.

If you are interested in taking part in this research with us please contact Tony on 020 8747 3620 or send an email to mailto:anna.marc@ems.eu.com %20If you would like to know more about us, please visit our website at http://www.ems.eu.com/

Thank you for your help in this research, we really appreciate it.

Kind Regards,
Vincent Wills

Database Manager

Phone: +44 (0) 20 8747 3620

Mobile: +44 (0) 78 8966 9865

EMS Research
107a Power Road
Chiswick London W4 5 PY
United Kingdom

MS Society encourages all members to vote on specialist respite provision

Author: MS Trust
Papers have now gone out for the MS Society AGM and members are being encouraged to register their votes on what has become a controversial issue, namely the provision of respite care within the MS Society specialist centres.

Three resolutions relate to respite care:
■6.4 Backing the Board's respite care decision to no longer provide residential respite care

■6.5 Suspending the Board's respite care decision

■6.6 Vote of no confidence in the Board of Trustees

For more click here

Core stability training programmes are valuable for people with MS

Source MS Trust:

A study published in Multiple Sclerosis this week shows improvements in balance and mobility in people with MS following eight weeks of individualised core stability training.  Read more here!

MS Society AGM Details

MS Society AGM
Date: 25 September 2010 to 25 September 2010

Location: Wembley Plaza Hotel (Hilton), Empire Way, Wembley, London HA9 8DS
For more details click here.

Politicians respond to MS Society Manifesto petition.

Government gives steps that now need to be taken forward

The response received last week pledges:
- to build on the National Service Framework (NSF) for long term conditions

- extend personal budgets

- ensure people get access to the right drugs and disability equipment
- better support for carers, and a review of the current carers strategy
Now the MS Society wants to see the Government deliver on this promise.

Read more here

Bristol MS Therapy Centre wins access road appeal!

Congratulations to the Bristol Centre - what a relief!  Read the BBC Bristol news article here:

Tuesday, 17 August 2010

Naidex South, Excel London 29th & 30th September 2010

Naidex South - Excel London, 29 - 30th September. Home of the newest products and services to aid independent living.


US probes corruption in big pharmaceutical companies

From the MSRC website: The US Department of Justice is scrutinising payments by leading pharmaceuticals companies for hospitality, consultants, licensing agreements and charitable donations in markets around the world as part of a wide-ranging corruption probe.
GlaxoSmithKline, Pfizer, Bristol-Myers Squibb and Eli Lilly, among others, have disclosed being contacted by the DoJ and Securities and Exchange Commission in connection with the investigation. Merck, the US drugs group, announced last week that it had also been contacted and was co-operating with investigators.


Social media drives MS controversy

A controversial treatment that promises relief from the daily torment of multiple sclerosis has created a deep rift between its proponents and those who say it doesn't work.


Inside the MS Society Tissue Bank

Professor Richard Reynolds, director of the MS Society Tissue Bank, discusses why the tissue bank is important in MS research and how it started up.  http://www.youtube.com/MSSociety

The next event for the PDSN Network is themed on Accessible Transport for Disabled People.

I am pleased to advise that the next event for the PDSN Network is themed on Accessible Transport for Disabled People. We have an exciting programme that involves a drop-in session from 11.00 - 12.00 to try out a range of transport that has been adapted including an coach/ambulance for outings and holidays and a display of adapted bicycles and taxi's.
The venue is at the Avenue School in Tilehurst and a map and directions are attached. A buffet will be available form 11.30 before a series of short presentations and an opportunity to ask questions about accessing the services who specialise in transport people with physical disabilities and their carers.

Please circulate this information and to invite a friend/colleague who would benefit from the information that will be available at the event. May I also ask that you email, telephone or complete the attached registration form and return this asap to enable me to finalise the catering arrangements.

Kind regards and hoping to see you at the event.

Angela Todd

Housing and Community Care - Strategy Team
Reading Borough Council
Direct line: 0118 937 4114