Thursday, 23 December 2010

Long Term Conditions: Joint Commissioning Strategy - Have your say

Reading Borough Council are inviting everyone to comment on their proposals. This includes people with long term conditions including HIV/AIDS, neurological conditions, physical disabilities and sensory impairments. They are also keen to receive comments from service users, patients, their carers, volunteers and professionals involved in their care as well as local councillors and MPs.  For more click here.

Cash cuts for councils announced

From the Reading Chronicle:

READING faces the second biggest cut to council finances in Berkshire - and the biggest in cash terms.

The cut in the council’s ‘revenue spending power’, taking into account all the various grants from Government, the council tax freeze and a new scheme in which NHS funding has been redirected towards social care, is £6.2m next year, or 4.26%.  Read full article here.

Health bosses issue Berkshire flu jab warning

From the Reading Chronicle:

BERKSHIRE health bosses are urging those at risk to get their flu jab.  Read article here

Vitamin D - New Guidance

From the MS Trust:

A number of health organisations including Cancer Research UK and the MS Society have issued guidance on vitamin D which considers a number of areas:  For more click here.

Disabled badges stolen from cars in Reading

From BBC Berkshire:
Thieves have stolen disabled badges from five cars in the space of two days in Reading, Berkshire, police have said.

The blue badge thefts all took place in the Whitley area of the town since Monday.  Read article here

Tuesday, 21 December 2010

BMSTC bags £3,000 NatWest Community Award!!

A huge vote of thanks to all of you who voted for us to recieve a NatWest Community award. Looked on their website today to see we get top vote and receive a £3,000 award! What a great Christmas present with thanks to all of our supporters - thank you! :)

Monday, 20 December 2010

BMSTC - Snow news!

We have had to close early today (Monday 20th December) due to adverse weather conditions. We do hope to be open for business as usual this week but advise people to check their appointment before setting out on their journey if the snow continues!  Thanks :0)

Thursday, 16 December 2010

BMSTC Christmas closing and opening

BMSTC will be closing for Christmas at 1.00 pm on Friday 24th December and re-opening on Tuesday 4th January 2011.  Best wishes to your for a very happy Christmas! :0)

The government is simply bullying disabled people

The Guardian:
Vital sources of support for disabled people are being torn from them, and myths about benefits encouraged

Read article here.

Medical charities unite to emphasise importance of vitamin D

From the MS Society:

Guidelines released today highlight the importance of maintaining healthy levels of vitamin D, whilst still remaining safe in the sun.  For more click here.

Half of Carers "made ill by job"

From Nursing Times:
The role of looking after a friend or relative is causing health problems among half of carers, a report has claimed.  For more click here.

NHS change - a risky business?

From the MS Trust:
Think tank Civitas - the Insitute for the study of civil society - today published a report A risky business: the White Paper and the NHS. This considers the NHS White Paper, Equity and Excellence: Liberating the NHS, in particular the plan to transfer commissioning from PCTs to GP consortia. Primary Care Trusts are to be abolished by 2013, when GPs will plan hospital care and manage budgets to pay for it.   For more click here.

Tuesday, 14 December 2010

Send Everygreeting Christmas eCards and raise money for BMSTC

With Everygreeting, this Christmas you cna send a little more than just good cheer!

Click on the link below for more info:

Berkshire council cuts announced

From the BBC:
Slough faces the the deepest budget cuts of Berkshire's six councils after the government revealed provisional details of its English council grants.

Slough Borough Council will have 4.86% less to spend on services in 2011/2012.

Wokingham Borough Council will have to make savings of 0.63% by comparison and the Royal Borough of Windsor and Maidenhead 1.06%.

Leader of Slough's Labour-run council Rob Anderson said the borough's cuts were politically motivated.

For more click here.

BMSTC Christmas Party!

We will be holding our Christmas Party on Friday 17th December from 1.00 to 3.00 here at the Centre.

We are delighted to welcome Wilson Road Primary School who will sing a few festive Christmas Carols.  Come and socialise with our MS Members, Volunteers, Staff and Trustees.  Light snacks will be served but please do bring a bottle!

We hope you can make it!

Independent Living Fund to be shut down by 2015

From the BBC:
A fund which supports more than 21,000 people with severe disabilities is to be phased out by 2015.

The £359m Independent Living Fund pays out an average of £300 a week, to help people pay for carers so they can live at home and not in a care home.  For more click here.

New Bracknell health centre plans submitted

From the BBC:
Plans for a new health centre which would provide urgent care as well as routine medical services have been submitted in Berkshire.

Berkshire East Primary Care Trust wants to build the one-stop centre at the Skimped Hill site in Bracknell. For more click here.

Virgin Money Giving ‘Click a Christmas Wish’

Your Christmas greetings could make a difference to your chosen charity this year. Simply set up a Virgin Money Giving ‘Click a Christmas Wish’ fundraising page, send your friends and family an e-card and donate the money you would’ve spent on cards and stamps to your charity.

Reading Half Marathon update

Fantastic news - We've got 33 runners that we know about running for us in the 2011 Reading Half Marathon! We still have 2 places left which are like gold dust! Get in touch with us asap by emailing  if you want to run on behalf of BMSTC! This event is now our biggest fundraiser of the year!! :0)

JLS star signs up for MS fundraiser

Source the Daily Echo:

BEFORE going on stage at Bournemouth International Centre, JLS star Oritse took time out to meet young carers following in his footsteps.

Oritse was just 11 years old when his mother was diagnosed with multiple sclerosis. He dreamed of being a singer, but his thoughts turned to finding a cure for the debilitating disease. Read article here.

MS news in the press - handle with care

From the MS Trust:
Everyone is looking for the next great breakthrough in managing or reversing MS. A couple of recent stories illustrate why the promise in the headlines should be treated with a degree of caution.   Read article here.

UPDATE 2-Teva multiple sclerosis pill shines in big study

From Reuters:
Teva Pharmaceutical Industries (TEVA.TA) (TEVA.O) expects its pill-based treatment for multiple sclerosis to receive U.S. regulatory approval within two years after a clinical trial met its main goal, it said on Thursday.  For more click here.

Thursday, 9 December 2010

GPs will trial new policy

From the Reading Chronicle:

A GROUP of GP surgeries from the Reading area has been chosen to lead one of the biggest shake-ups in the history of the NHS.

The 18 practices, which serve more than 100,000 people in south Reading, will be among the first in the country to test-run radical Government proposals to give doctors control of the NHS purse strings.  Read full article here.

Vitamin D, the cure-all supplement that could be bad for your health

From the Independent:

It is called "bottled sunshine" and claimed to be one of the most effective health supplements on the market. Scores of studies have suggested that it protects against heart disease, cancer, diabetes, high blood pressure, schizophrenia and multiple sclerosis, and a growing number of doctors have recommended it to their patients.  Read full article here.

MS Society trustees cleared over row with Scottish council

MS Society trustees cleared over row with Scottish council

From the Civil Society:

Trustees of the MS Society have been cleared of wrongdoing in suspending the powers of the organisation’s Scottish Council, with the Charity Commission confirming that they acted on specialist legal advice in good faith at all times.  Read full article here.

Eating purple fruit could fend off Alzheimer's Disease and Multiple Sclerosis

From the Telegraph:

Eating purple fruit could fend off Alzheimer's Disease and Multiple Sclerosis

Eating purple coloured fruit such as blueberries could help ward off Alzheimer’s, Multiple Sclerosis and Parkinson’s because it soaks up harmful iron compounds, new research suggests.  Read article here.

Blueberries 'help fight diseases'

From Yahoo news:
Blueberries and green tea help the body take an iron hand against diseases such as Alzheimer's, Parkinson's and multiple sclerosis, research suggests. Read full article here.

Wednesday, 8 December 2010

BMSTC User Survey

If you receive treatment, or have received treatment at the Centre in the past 3 years you should have received our user survey to complete.  Thanks to everyone who has taken the time to return these, it helps us to develop our services to better meet the needs of our service users.  We also get some great comments back which we can use in publications such as our annual report....

"Ruth (our Physio Manager) gave me not only physical support but also emotional and psychological support which helped me get out of a bad patch; get back to work and flourish! Thanks so much to all at the BMSTC for helping me to live with my MS in a positive way, and for letting me know I am never alone."

Thank you for your feedback!

Scientists explore how to repair MS damage

From NHS Choices:
Scientists have announced a "revolutionary" discovery that could reverse the nerve damage and paralysis caused by multiple sclerosis, reported the Daily Express.

Read full article here:

Purdue research finds a clue in the multiple sclerosis puzzle

Last Friday morning, physical therapist Carol Krueger-Brophy helped Sandra Borders inch across the room. Borders held tightly to her walker and with every step, she tried to regain her ability to walk.

"I want to walk again," she said. "I want to be independent again. For me, the lost of independence was just devastating."

Borders' independence was stripped from her after a recent attack from multiple sclerosis, a debilitating disease where the body's immune system nibbles away at the protective sheath surrounding the nerves.

Read full article here.

Biogen Idec Awards Clinical Fellowship Program Grants to Support Education and Research for the Treatment of Multiple Sclerosis

As part of its commitment to furthering the quality of education in the field of multiple sclerosis (MS), Biogen Idec (NASDAQ: BIIB) is proud to announce that it provided grants to twelve prestigious universities and medical centers across the country for the 2010-2011 academic year. The grants were awarded through the Biogen Idec MS Clinical Fellowship Program and provided a total of $900,000 to recipients for the placement of clinical MS Fellows.

Read full article here.

Tuesday, 7 December 2010

Reading Borough Council launch 12 week consulation on adult social care

Reading Borough Council have launched a 12 week consultation on some proposed changes to adult social care. Everyone who uses RBC adult social care services at the moment will receive a letter about this, including a questionnaire to complete. No decisions will be taken about whether to go ahead with the changes unti...l next year, at this stage RBC are simply asking people to comment on the principles involved.

For more info click here

What is the MS service like in your area?

From the MS Trust:
Early next year the MS Trust, in partnership with the Royal College of Physicians, will be undertaking the third survey of MS services in England and Wales and we would like you to take part.  For more info click here.

UK Multiple Sclerosis Society - MS Frontiers speakers biography on Professor Robin Franklin

From the MS Society:

Robin Franklin is Professor of Neuroscience at the University of Cambridge.

He has joint appointments at the Department of Vetinary Medicine and at the Cambridge Centre for Brain Repair. He is Director at the MS Society Cambridge Centre for Myelin Repair. Professor Franklin studies regenerative processes in the adult CNS. A particular focus has been the mechanisms by which adult neural stem/precursor cells are able to generate new oligodendrocytes following demyelinating disease.  Watch video here.

Monday, 6 December 2010

Myelin repair a reality, says MS Society research

From the MS Society:
Groundbreaking MS Society research has shown that damage to myelin can be reversed using stem cells.  Read article here.

MS treatment breakthrough 'exciting'

Listen to the BBC Radio 4 Today:
Neurological damage caused by multiple sclerosis could be reversed by encouraging the brain's own stem cells to repair themselves, according to a new study.   To listen click here.

Thursday, 2 December 2010

UK Disability History Month

UK’s first ever Disability History Month (UKDHM) taking place on the 22nd November to 22nd December 2010

The month will be about giving a voice to our history. It is about celebrating the lives of disabled people, recognising our rights and the past struggles for equality.

For more info click here.

Carers Rights Day 3rd December 2010

Carers Rights Day 3rd December 2010 - This year Carers Rights Day, a national campaign run by Carers UK is looking at carers rights and the new protections provided by the Equality Act which is coming into force this autumn.

For more details click here.

Mike Laver from the MS Trust honoured at national business awards

From the MS Trust:

Trustee of the MS Trust, Mike Laver, has been honoured at the 2010 Barclays Trading Places Awards, which recognise people who have beaten the odds to succeed in business.  Read article here.

Virgin Money Christmas Cards!

You can help to raise money for the Berkshire MS Therapy Centre by sending Virgin Money Giving e-cards this Christmas! :0)

Assisted dying inquiry backed by Terry Pratchett starts

From the BBC:
An inquiry into assisted dying has been launched with funding from author Sir Terry Pratchett, a supporter of helping terminally ill people end their lives.

Read full article here.

Multiple sclerosis, seizures, and antiepileptics: role of IL-18, IDO, and melatonin

From the European Journal of Neurology:

To review the treatment and mechanisms underlying the increased prevalence of seizures associated with multiple sclerosis (MS). We carried out an extensive review of the literature pertaining to seizures in MS. Read full article here.

Simon Gillespie in BBC Radio Scotland

From the BBC:

Simon Gillespie was interviewed on the subject of Leuchie House. The interview can be found at approximately 54 minutes in on the link below.