Wednesday, 23 February 2011

Farewell to Francesca!

It was Francesca's (our Junior Physio) last day with us yesterday :0( She has been absolutely fantastic and we know she has a great career ahead of her. She will be missed by so many people at the Centre. We had a great night out at Jamie's in Reading to help her on her way and know that she will keep in touch :0)

Government Bill must change or MS services could suffer

From the MS Society:
The MS Society, Motor Neurone Disease (MND) Association and Parkinson’s UK have joined forces to ensure the Government’s new plans, as set out in the Health and Social Care Bill, do not overlook neurological conditions. The neurological charities have responded to the Bill.   Read more here.

Thank you!

Thank you to all of our clients who completed our recent user survey. It's provided us with lots of very userful info to support our funding applications and to help us develop our services. We've had some great comments back which we'll share with you.  Thanks again :0)

"Ruth (our Physio Manager) gave me not only physical support but also emotional and psychological support which helped me get out of a bad patch; get back to work and flourish! Thanks so much to all at the BMSTC for helping me to live with my MS in a positive way, and for letting me know I am never alone." :0)

Professor David Bates answers your questions about drug therapy

From the MS Trust:
The MS Trust has asked Professor David Bates, Consultant Neurologist at University of Newcastle-upon-Tyne NHS Hospitals Foundation Trust to answer some of the most challenging questions people with MS ask about disease modifying drugs. For more click here.

Punitive cuts to disability payments

From The Guardian:
The article on the lady living with multiple sclerosis fearful of losing the welfare support needed to retain her independent living (Disability grant cut: a life and death issue, 14 February) will strike a chord with anyone whose work brings them into contact with the benefit system. Disability living allowance (DLA) and attendance allowance (for older people) were designed to be enabling benefits, not a measure of how sick or infirm you were.

Read more here:

MMDS Acquires Patent For Medical Marijuana Patch

From the
Medical Marijuana Delivery Systems LLC announced today that it has acquired the United States Patent rights to the Medical Marijuana Patch. The patent provides MMDS with exclusive rights for development of the Patch for transcutaneous delivery of medical marijuana to humans and animals.   Read more here.

Welfare Reform Bill published

From the MS Trust:
On 16 February, the government began the process of reforming the benefit system by introducing the Welfare Reform Bill to Parliament.

Among the proposals in the bill are:  Read more here

Survey of MS services across England and Wales

From the MS Trust:
We are sorry that some people may have had problems accessing the survey, particularly over the last two weekends. The Royal College of Physicians assures us that the problems with their website have now been rectified. Your input is really important to us and we would be really grateful if you could spare the time to try again.  Click here for more.

Disability benefit reforms: Minister undeterred by campaigners' anger

From the Guardian:
Maria Miller, the minister for disabled people, says incapacity benefits must be overhauled, writes Amelia Gentleman. Read more here.

The MS Society on radical plans to change the benefits system

From the MS Society:

Yesterday the government published radical plans to change the benefits system in its Welfare Reform Bill. Today, the MS Society explains what these mean to people with MS, what they’re saying and doing about it and how you can get involved.  Read more here.

Thursday, 17 February 2011

New radio show to help people live with pain

From the MS Trust:
More than half of all people with multiple sclerosis will experience pain at some stage. The management of pain in MS is not always easy and may include drugs or non-drug treatments such as physiotherapy. Learning from the experience of others can help; Airing Pain is an internet radio show which provides information and support to people living with chronic pain.  Read more here.

Cannabinoid receptor signaling in neurodegenerative diseases: a potential role for membrane fluidity disturbance

Source the British Journal of Pharmacology:

Type-1 cannabinoid receptor (CB1) is the most abundant G-protein-coupled receptor (GPCR) in the brain. CB1and its endogenous agonists, the so-called “endocannabinoids (eCBs)”, belong to an ancient neurosignaling system that plays important functions in neurodegenerative and neuroinflammatory disorders like Alzheimer's disease, Parkinson's disease, amyotrophic lateral sclerosis and multiple sclerosis. For this reason, research on the therapeutic potential of drugs modulating the endogenous tone of eCBs is very intense. Several GPCRs reside within subdomains of the plasma membranes that contain high concentrations of cholesterol: the lipid rafts.

Read more here.

BMSTC Summer Fayre - officially opened by Paul Daniels and Debbie McGee!

Our Summer Fayre and plant sale will be held on Saturday 28th May 1.00 - 3.30 pm.  We are delighted to announce that our Patron Paul Daniels and Debbie McGee will be our guests to officially open the Fayre!

Come along and browse our stalls and buy lots of lovely things including plants, homemade cakes and preserves, books, crafts, gifts, tombola, raffle plus much much more!

Tuesday, 15 February 2011

Cuts disastrous for brain science research, academics warn

From the Guardian:
At least 30 neuroscience units to go under cuts proposed by Biotechnology and Biological Sciences Research Council.  The closure of drug company research facilities and "draconian" funding cuts will have a disastrous impact on brain science in Britain, senior academics have warned.  Read full article here.

'Life not worth living' for disabled people facing benefit cuts

From the Guardian:

For Ella Findlay, the £400 a month in welfare payments she receives from the state is the difference between life and death. With the money she is able to live alone, work as an employment adviser and pay for a specially modified car.  Read full article here.

DLA public consultation deadline extended....

From the MS Trust:
The deadline to respond to the Disability Allowance (DLA) reform consultation has been extended to Friday 18 February due to IT problems affecting the online feedback form. Responses can still be submitted by email to the following address: to read full article click here.

BrainStorm's ALS therapy wins orphan drug status from FDA

"BrainStorm's therapies are based on research conducted by neurologist Prof. Eldad Melamed and cell biologist Prof. Daniel Offen. The target diseases are ALS and other degenerative neurological conditions such as Parkinson's, multiple sclerosis and spinal cord injuries."  For more click here.

The Body Shop comes to BMSTC today!

From Lisa Heney (Yvonne Parks Sister!)

The Body Shop comes to BMSTC tomorrow - tues 15 Feb between 5-7pm. 30% off almost everything ordered on the night. For those of you that can't make it down, the discount will be honoured until the end of the week. Orders collected Friday for delivery next week. The centre will also receive a donation from all orders placed! Hope to see you there.

Do you have equipment issued from the Berkshire Community Equipment Service which you no longer require?

Do you have equipment issued from the Berkshire Community Equipment Service which you no longer require? South Central Ambulance Service can arrange for the equipment to be collected cleaned and reissued. Call 0118 9789014

between 8:30am and 4:30pm Monday 28th February to Friday 4th March 2011 to arrange your collection.

New blue badge crackdown

From the BBC:
The government is to announce a package of measures aimed at cleaning up the much abused disabled blue badge parking scheme.  For more click here.

Guardian Focus podcast: Multiple Sclerosis and the cost of being ill

From the Guardian:
Guardian Focus podcast: Multiple sclerosis and the cost of being illWhy will the weakest in Britain bear the brunt of the government's austerity measures? Elizabeth Kinder investigates the impact of the cuts on sufferers of MS, a degenerative disease with no known cure.  To listen click here.

Interview with Doug Brown Head of Biomedical Research at the MS Society

From the BBC:
Dr Doug Brown, Head of Biomedical Research at the MS Society, was interviewed on the MS Society committing £2m over the next five years to fund a second stage of myelin repair research. The interview begins at 2 hours and 18 minutes and ends at 2 hours 23 minutes.  To listen click here.

Laura Weir from the MS Society speaks on Radio Oxford about DLA

From BBC Oxford:
Laura Weir, Head of Policty and Campaigns at the MS Society was interviewed on the government's overhaul of the benefits system. Laura spoke about the Disability Living Allowance and what the proposed changes will mean for people living with MS.

The interview begins at 1 hour and 3 minutes and ends at 1 hour nine minutes.  To listen click here.

Oxygen Therapy

From MSRC:
Research from various countries, for example, USA, Russia, Argentina, Italy, shows that oxygen therapy can help ease the symptoms of many people who have Multiple Sclerosis.   For more click here.

An inspiration!

This post was suggested by one of our supporters who says "I found this short video interesting for people who have disability or even for others who think about themselves very low. They can be happy and do many things. He does not have a leg but he dances better than some people who have two legs!" Amazing video :)
Click here to view.

Sun exposure, vitamin D linked to MS risk: study

From the MS Trust:

People who have spent more time in the sun and those with higher vitamin D levels may be less likely to develop multiple sclerosis, according to an Australian study.  Read more here.

Monday, 7 February 2011

Supermarket makes £5,000 donation to good causes

From the Henley Standard:

Congratulations to our partners Headway Thames Valley and the Henley MS Society! :)

Read article here.

MS Society funds second stage of myelin repair research

From the MS Society:
In December, we announced great news that scientists at the University of Cambridge had found a way of reversing damage to myelin using stem cells. The work was funded by the MS Society.  For more click here.

Counting down to MStival!!

Counting down....only three weeks left to go to Clark French's MStival on Saturday 26th February!

Clark appeared live on Reading4U Community radio station this morning and did a great job explaing about how the Centre has helped him and how he is wanting to raise money to help others. Well done Clark we're proud of you! :0)

For more information on the event please visit our events page here!

Body Shop at Home party here at BMSTC Tuesday 15th February

An opportunity to experience and sample some of the best selling pamper products from the Body Shop with 5% of the profits being donated to the Centre! Please come along and join us here at BMSTC!

Tuesday 15th February 5 - 7pm. 

Call 0118 901 6000 if you have any queries!

Please sponsor Tracy Beers (our lovely sandwich lady!)

My training is involving blood, sweat and tears to earn your worthy sponsorship!!! Thanks for all your support BMSTC. x

Visit her Just Giving page here.

Source The Japan Times:

While the scientist drove over a bridge between Shikoku and Honshu on his way to take up a post researching traditional herbal remedies, Fujita realized that the fungus, used in a Chinese medicinal soup, must be suppressing the immune system of the insects on which it grew.  For more click here.

WIN A CAR - Free prize draw!

Enter Constables Free Prize Draw to win a brand new car (wheelchair accessible)

This year, David Constable, founder and owner of Constables Limited is celebrating 30 years of expert engineering. From designing and engineering the ground breaking world famous Car Chair, through to market leading rear access wheelchair accessible vehicles in the modern day era, David is renowned for innovation and quality engineering, being at the forefront of disabled transport since 1981 . To mark this occasion, Constables Mobility is giving away a brand new car, fully converted for wheelchair access to one lucky winner.  For more click here.

MS discussed in the Lords

From the MS Trust:

Changes that affect people with multiple sclerosis will be address twice this week in the House of Lords.

On 2 February, Lord Walton of Detchant asked a question about the proportion of people with MS receiving disease-modifying drugs in the UK. The government health minister Earl Howe mentioned that more than 12,000 has received the drugs under the Risk-sharing Scheme but did note the lower than expected take up of the newer drug Tysabri.  Read more here.

Thank you to shoppers who supported BMSTC at Waitrose Caversham!

Jackie Malcolm
From Jackie Malcolm:
Thank you to everyone who shops at Waitrose in Caverham and chose to support the MS Centre in the Community Matters boxes. We received the most green tokens and will be receiving £390 soon!

Tuesday, 1 February 2011

MS Society Awards 2011

From the MS Society:
The aim of the MS Society Awards is to highlight the achievements of people with MS, their families and carers, and the MS professionals who make a difference to the lives of people with the condition.   For more click here.

New vehicles from Gowrings Mobility

From Gowrings Mobility:

Ford LWB Transit:  Brand new for 2011 is our spacious conversion of the long wheelbase version of the Ford Transit. It offers peace of mind for everyday use as a genuinely accessible minibus that puts the wheelchair users right in the centre of this conversion design.  For more click here.

Doctor challenges cause of MS

From the MS Trust:
Canadians and Americans with MS have been flocking overseas to get the "liberation procedure." Something that many researchers find very troubling.

One day 7 years ago, after a long walk with his dog along the Hudson River in Manhattan, Marc Stecker noticed he was limping. Not long after, he was diagnosed with multiple sclerosis.  For more click here.

Join the DLA Debate - 14th February is the deadline for responses.

From the MS Society:

Living with MS is expensive. But Government cuts to Disability Living Allowance (DLA) could mean that thousands of people with MS lose vital financial support. Get involved with the debate and let your MP know how important DLA is.  For more click here.

Hospital uses flu emergency plan

Source BBC News Berkshire:

The Royal Berkshire Hospital has revealed it was forced to implement its emergency pandemic plan earlier this month due to the flu outbreak.  Read full article here.