Thursday, 25 April 2013

The e-Health Impact Questionnaire for people with MS

Health websites have conventionally presented information in the style of scientific facts; however, experiences of health are increasingly exchanged by patients and carers online. Patient experiences of health have been incorporated into mainstream health websites and stories or testimonials about other people’s health can currently be accessed on NHS Choices, national and local charitable groups and private company websites. It is important to understand what impact these health websites have on patients and carers.
A research team in the University of Oxford are researching the effects of sharing online patient information. They wish to find the best way to incorporate people’s experiences into health websites. One component of this research involves developing a questionnaire (The e-Health Impact Questionnaire) which asks people about their views of online information and the impact it may have on them. They would like your help to find out whether the questions are easy to understand and accurately reflect the effects of using health websites among people who have Multiple Sclerosis.

The development of the e-Health Impact Questionnaire is being carried out in collaboration with a number of study groups in Northumbria, Warwick, Oxford and Scotland. Together, they hope to incorporate this questionnaire in clinical trials in the later stages of the study. It is therefore important to establish if the questionnaire is suitable for this purpose before the trials commence.

This research will help the Programme to make policy recommendations about how personal experience information can best be used in health websites to improve patient support and well-being. The Programme is funded by the    National Institute for Health Research.
Can you help with this research?
The research team are asking people who have Multiple Sclerosis, are aged 18 or over and have access to the internet to take part in this questionnaire. You must also live in the United Kingdom.

What will taking part in this study involve?
To take part in this study, you will need to complete an online questionnaire. Participants are asked to complete a set of questions asking about their general attitudes towards health-related websites. They are then asked to browse a health website and answer a set of questions relating to that website. Participants will be asked to repeat this task after a period of two weeks. This will take 20-25 minutes on two separate occasions.

Please click on this link for further information and to take part in the questionnaire: Click here to take the survey.
If you would like to contact the research team, you can do so by emailing Laura Kelly at