Friday, 27 September 2013
Mutual Support is one of the MS Society’s National Support Groups and is run by volunteers with direct experience of MS and the Armed Forces and provides services and activities based on what people affected by MS have said they want. For more information click here.
Wednesday, 25 September 2013
The MS Society’s newly edited sex, intimacy and relationships guide won first prize in the self care category at the BMA Patient Information Awards last week. Read more here.
HEALTH bosses announced shock plans this week to sell off the iconic frontage of the Royal Berkshire Hospital - to turn it into a free secondary school. Read article here.
Monday, 23 September 2013
Henley Standard coverage of the many charity walks that took place in Henley including Walking for MileS 2013 (see bottom of article). A fantastic picture of the Barkwells with their majestic dog "Queenie" who walked for BMSTC! Read article here.
The influenza virus is a constantly shifting target so seasonal flu vaccines rapidly become useless and new ones are needed each year.
A team at Imperial College London say they have made a "blueprint" for a universal flu vaccine. Read more here.
All you need to do is call NHS Talking Therapies and tell them you have MS or are caring for someone with MS and they can re-arrange or arrange your appointment. Please call direct on 0118 9769121 or refer online www.talkingtherapies.berkshire.nhs.uk
Thursday, 19 September 2013
My name is Emma Benjamin. I am a Chartered Counselling Psychologist registered with the British Psychological Society and the Division of Counselling Psychology. I carried out my undergraduate degree at the University of Surrey and my doctoral training at City University London.
Emma will start on Tuesday 14th May and offer appointments every other week between 2.00 to 7.00pm (last appointment 6.00 pm). Emma is also happy to see people in her private clinic on another day if that is more convenient. Please contact Pippa on 0118 901 6000 or email firstname.lastname@example.org for more details.
Wednesday, 18 September 2013
The DWP has announced it will delay, until 28 October 2013, the roll out of face to face benefits assessments for people moving from DLA to Personal Independence Payments.
The MS Society is calling for an end to the 20 metre rule for the enhanced rate mobility component of the benefit. Read more here.
Raflle Prizes needed!! We have a few events coming up of the next couple of months which we need raffle prizes for. If you, your company, local pub etc would like to donate a prize, please either bring it in to Pippa at the centre or email email@example.com Many many thanks! :0)
Dexter sporting his finishing medals from the Half Marathon course :0)
Representing all people in Berkshire West affected by a neurological condition
Registered charity No. 1081021
‘Coping when health and social care systems falter’
For patients and carers affected by a neurological condition living in Wokingham, Reading and West Berkshire
Monday 14th October 2013
Arrivals from 13.45 hrs.
Focus group from14.00 – 1600 hrs
At the Brightwell Suite at the Holiday Inn, Padworth, (just off the A4)
To attend please contact John Holt on 01635 33582 firstname.lastname@example.org
Limited places, confirmed booking is essential, please.
Purpose To capture the experiences of people affected by a neurological condition when health and social care systems falter. The report we will produce will help health and social care providers to review how services might be improved and help others to cope better.
1. Welcome and introductions
2. Purpose and focus group ‘rules’
3. Open discussion:
actual examples of where local care systems have faltered
personal experiences and impacts
coping and not coping
low and high points
good coping practice for others to consider
4. Recommendations for the statutory, private and voluntary sectors
* Free event with light refreshments available throughout.
* Good facilities for disabled visitors.
* Plenty of free parking. (Or a short walk from Aldermaston station).
* Travel expenses will be paid to invited delegates; please ask.
Directions from Reading: from junction 12 of the M4, travel West on the A4, continuing past Theale for about three miles. The hotel is on the left.
Directions from Newbury: follow the A4 through Woolhampton. After about two miles the hotel is on the right.
We’re delighted to announce funding of 18 groundbreaking research projects, taking our total spend on new research in 2013 to £2.1 million.
The projects cover cause, cure, symptom relief and MS services research. Read more here.
Tuesday, 17 September 2013
Thursday, 12 September 2013
Last chance to pre-register for Walking for MileS this Sunday 15th September!
Please complete your online entry by 9pm this evening, Thursday 12th September. Register here!
Our MS National Centre open day in London is a great opportunity for you to meet MS Society staff and other volunteers, hear about activities happening across the charity and discuss the issues that affect you. Read more here.
In the August issue of our newsletter Open Door we spoke to Barbara, a woman with MS who fought back against workplace bullies and unfair dismissal with the help of her lawyer Anna, who also has MS. Since we published their story, we’ve received a lot of enquiries from readers who would like to draw on Anna’s experience and insight. So all this week on our blog we are going to be featuring a selection of your questions and Anna’s answers. Read more here.
Simple changes in posture can have a really beneficial impact, particularly if you spend a lot of time sitting down.
Our free book, 'Are you sitting comfortably..?' can help you make sure that your posture is as good as possible throughout the day and night: http://ow.ly/oJObf
We are in the process of recruiting a new Junior Physiotherapist, feel free to pass the details on to anyone you think may be interested. More information including Job Description and application form can be found here!
Sue Ryder wins race to become Reading Half Marathon ‘official charity.
Seven organisations will be working with the event organisers, who are aiming to make it the largest fundraising half marathon in the south of England
The three local charities are Berkshire MS Therapy Centre in West Reading, the town centre-based homeless charity Launchpad and Central Reading-based PACT which supports vulnerable families. Read article here!
Sleep ramps up the production of cells that go on to make an insulating material known as myelin which protects our brain's circuitry.
The findings, so far in mice, could lead to insights about sleep's role in brain repair and growth as well as the disease MS, says the Wisconsin team. Read more here!
Monday, 2 September 2013
We will all miss Ruth greatly, she has been a part of the BMSTC team for 19 years! We wish her the very best of luck in her new vocation to train as a Minister in the Methodist Church. Good luck Ruth, we're missing you already! xxx
Almost half of people with a progressive condition who put in a claim for Employment Support Allowance (ESA) have been told they will ‘recover’ enough to look for work in the future. Read more here.
The NHS has published its leaflet "The flu vaccination who should have it and why" for the 2013/14 flu season. It lists groups who may be more susceptible to the effects of flu and this includes people with MS even if they are feeling healthy. The main carers for a disabled person are also advised to get vaccinated.
Read more here.
You can enter the event here! Or sponsor Martin here!
Local councils are being encouraged to improve access to beaches and other tourist locations across the UK in a bid to increase the enjoyment of disabled visitors and boost business. Read more here.