Thursday, 27 November 2014

Second hand Hoist available

On of our members has a hoist surplus to requirement:

Molift Smart - Second hand hoist from one of our members: We have a Molift Smart mobile hoist which we bought in 2009. It has a battery charging unit and two batteries both perfectly OK. The hoist has not been used for a couple of years and would need to be serviced. For more information email

For information about the model click here.

Wednesday, 26 November 2014

As Black Friday approches don't forget to use Give as You Live!

As Black Friday approaches for online Christmas Shopping, don't forget to register with Give as You Live. There are hundreds of companies such as Amazon, John Lewis, Sainsbury's who will give a donation to BMSTC when you shop with them online at no extra cost to you! Very simple to use! for more click here!

Christmas Fayre Success!

Thank you to our Members Link Group and all of the volunteers and supporters, particularly MP Alok Sharma who came along to the Christmas Fayre on Saturday. 

 The day was a great success and raised a massive £1,513.07p! Thank you to everyone involved for all of your hard work and support! :0)

OHSU is proceeding cautiously on new MS treatment using stem cells

Source Bizjournals:

Oregon Health & Science University isn't rushing to use a new a Multiple Sclerosis therapy that uses a person's own stem cells.
Dr. Richard Burt, chief of the division of immunotherapy at Northwestern University's Feinberg School of Medicine, on Friday spoke to a group of physicians at OHSU's Multiple Sclerosis Center about use of hematopoietic stem cell transplant (HSCT).  Read on.

Good luck Robert!

Source Get Reading
An IT engineer will be taking part in his first competitive run at the 2015 Vitality Reading Half Marathon next March to help a charity that has greatly helped his father.

Robert Bromley, 21, from Tilehurst (pictured with his Dad, Kerry), is supporting the Berkshire MS Therapy Centre at the event which starts at Green Park on March 22. Read on.

On Monday November 17th a Parliamentary Reception was held to share the latest results from the Risk-sharing Scheme (RSS) for MS drugs.

Sarah Joiner with George Freeman

Source MS Trust:

As the administrator for the RSS the MS Trust has worked for the last 12 years with the five parties to the Scheme namely the Department of Health, Biogen Idec, Bayer, Merck Serono and Teva to collect ongoing clinical data from 5,610 people with MS across the UK.  Read on.

Britain’s 20 most accessible tourist attractions

Source The Telegraph:

From London's Science Museum to the Titanic attraction in Belfast, here are 20 of the best attractions for disabled travellers.  Read on

MS Society campaign shortlisted for award

Source MS Society:

The MS Society’s Treat Me Right campaign has been shortlisted for The Public Affairs Awards voluntary sector campaign of the year.
Launched during MS Week in April 2014, Treat Me Right is calling for the right treatment at the right time for people with MS.  Read on.

Wednesday, 12 November 2014

Circuit Lane Surgery in Reading to be taken over by Trust

Source BBC:

A surgery where five doctors resigned will be taken over by a trust, while a long-term solution is looked for.

NHS England has announced that Berkshire Healthcare NHS Foundation Trust will run Circuit Lane Surgery in Southcote, Reading.

It follows the the resignation of the GPs in September, leaving 10,400 patients in the dark about its future.

Christmas Closure and extra Oxygen Therapy

BMSTC will be closed from 1pm on Wednesday 24th December until 9am on Monday 5th January. Our volunteer oxygen operators will be running oxygen therapy sessions during this time:

Tuesday 30th Dec - 3.30pm 24' and 5.45pm 33'

Saturday 3rd Jan - 10am 33' and 12 noon 33'

We recommend you book your place early if you would like to attend any of the extra sessions by calling 0118 901 6000.

We are very grateful to our volunteers for offering to give up their time over the Christmas period to help :0)

Do you know someone who deserves to have their life improved?


Next MS Specialist Nurse and MS Specialist OT Clinic at BMSTC

Next MS Specialist Nurse and MS Specialist OT Clinic at BMSTC is on the 12th December. Call 0118 901 6000 to make an appointment. (Please note they are only able to see people who are eligible to be seen by consultants in the Berkshire NHS Trust)

Tuesday, 11 November 2014

Inequality of access to MS specialist nurses across the UK is shown by MS Trust report.

Source: MS Trust

A report published today by the MS Trust finds that 30,000 people with MS live in areas where their specialist nurses are managing twice the sustainable level. This may mean that these people are not receiving all the support that they need. Read on

Help Needed at Christmas Fayre!

The BMSTC Link Group who organise the Christmas Fayre need some strong, willing and able bodied people to help setting up tables etc. 10am to midday, and then to help pack away from 3.30 to 4.30pm. on Saturday 22nd November at BMSTC.

If you can help (or nominate someone else to!) then please email Glynis: or call 118 901 6000. Thanks in advance! :0)

Monday, 10 November 2014

Photo: Andrea Dewing,  daughter of Andrea and Bob, completed the Great South Run for the Centre and raised a lot of money. 
Thank you Jenny :)
We have a great team of runners, but we are alway looking out for more, so if you know anyone who would like to run the London Marathon or the Reading Half Marathon, please ask them to contact Jackie at the Centre now!
Jenny Dewing, daughter of Andrea and Bob, completed the Great South Run for the Centre and raised a lot of money.
Thank you Jenny

We have a great team of runners, but we are alway looking out for more, so if you know anyone who would like to run the London Marathon or the Reading Half Marathon, please ask them to contact Jackie at the Centre now!  Email or call 0118 901 6000

Carers Rights Day - 28th November 2014

Carers Rights Day, 28th November 2014. Lots is changing for carers in terms of what they’re entitled to from social care, so the Council will be hosting an event to discuss this with Reading carers from 2pm in the Council Chamber at the Civic Centre.

Come along to receive your free copy of the updated ‘Looking After Someone’ carers rights guide from Carers UK, and to talk to us about plans for implementing the Care Act and the Children and Families Act from next year.

Light refreshments will be included.

Stop Press! - Newsletter correction

The Partners & Carers club meet on a Thursday, not Wednesday as stated in our newsletter.  Our apologies to the club!

Wednesday, 5 November 2014

BMSTC Christmas Fayre

Don't forget our Christmas Fayre here at BMSTC on Saturday 22nd November, 1.00pm to 3.30pm.  Officially opened by Reading West MP Alok Sharma.

- Father Christmas - Seasonal Gifts - Homemade Cakes - Refreshments - Tombola - Raffle and much more! - Admission only .50p!

Jackie Malcolm announces retirement next year!

Jackie has recently announced that she will be retiring on the 2nd April next year, we are all very sad that she will be leaving us although I'm sure she will still get roped into volunteering for us!

I'm sure you will want to join me in thanking Jackie for doing such a fantastic job fundraising for BMSTC for the last 8 years, and to send her our very best wishes for a happy retirement next year. She has been a joy and pleasure to work with and developed our Fundraising to a new level. 

Jackie wrote an article for our latest newsletter:

"It never ceases to amaze me what people will do to help the MS Therapy Centre and how heart-warming it is that they do so.  This is what I will miss most of all when I take retirement in April next year.

I will, by then, have been working for the MS Therapy Centre for eight years and it has been a very fulfilling and rewarding occupation. My previous background was in business, both large and small, with the main aim of making a profit. Fundraising for the Berkshire MS Therapy Centre made me focus on creating money for the common good and it has been enormously satisfying doing this and I will miss you all.

Of course, I do not live far away and I will come back on a regular basis to visit. No doubt, my successor, Samantha Harper, will be asking me to marshal events! Working at the MS Therapy Centre has been, without doubt, the most enjoyable and satisfying job I have ever done, I have learnt a lot and made many friends."

Samantha Harper has been working as a Fundraiser for MS-UK (formerly MS Resource Centre) for the past 4 years.  We look forward to welcoming her to the team in early January 2015.  Watch this space for more news.......

We're hiring!

BMSTC are looking for a qualified Physiotherapist (Band 6) for maternity cover from January 2015. This will be for a 12 month fixed term contract period. 

 Please see click here for  more information and feel free to spread the word.

Repurposing medicine could help MS sufferers

Various types of medicine in pill form
Source The Telegraph:

SIR – A number of repurposed medicines have shown strong preliminary evidence that they could be effective in the treatment of multiple sclerosis (MS), but Britain lacks a system by which old drugs can be relicensed for new purposes.   Read on.

The disability benefit Employment and Support Allowance (ESA) has featured heavily in the news

Source MS Society:

Published date: 30 Oct 2014 at 1:23PM

The disability benefit Employment and Support Allowance (ESA) has featured heavily in the news in the last 24 hours.
While the BBC has reported leaked documents about the future of payments, a major announcement on the new company replacing the assessment provider Atos has also been made.  Read on.

MS Society announces £1.45 million of new research

Scientist using a pipette
Source MS Society:

We are delighted to announce funding for 15 exciting new research projects, costing a total of £1.45 million.

 This brings our current number of active projects to 59, with research spanning cause, cure, symptom relief and MS services.  Read on.

Work starts on Cardiff University brain imaging centre

artists' impression of the Cardiff University Brain Research Imaging Centre (CUBRIC)

Source BBC:
Work to build a £44m brain imaging centre to help experts better understand the causes of conditions like dementia and multiple sclerosis has begun in Cardiff.

Researchers at the Cardiff University site will use mapping techniques to get a more detailed look at how the brain works.  Read on.