Tuesday, 26 April 2016

May - Celebrate the national month of walking by doing Nordic Walking

Each May the charity Living Streets celebrates National Walking Month. A month dedicated to encouraging people across the country to take to their feet and feel the benefits of walking. (www.livingstreets.org.uk). Why don’t you join our Nordic Walking group in Prospect Park on Mondays 13.30-14.30 from 09.05.16 to help increase your amount of walking. Sign up with Henriette on 0118 901 6000 or email henrietta@bmstc.org

Thank you to all of our London Marathon Runners!

We would like to say a huge thank you to all of our runners who completed the London Marathon last Sunday.  Gemma, Simon, Andy, Ilona, Paul, Claire, Clay, Craig, David and Rebecca – our marathon heroes! They have raised over £13,500 so far, but it's not too late to show your support at https://www.justgiving.com/bmstc

A new scientific consensus has been reached that changes the way relapsing forms of multiple sclerosis (MS) should be treated.

Source MS Society:

A new scientific consensus has been reached that changes the way relapsing forms of multiple sclerosis (MS) should be treated.

The evidence now tells us that, rather than waiting to see whether more relapses occur, disease modifying therapies (DMTs) should be offered as close as possible to diagnosis.   Read on.

Study Shows Potential of Novel Compound to Treat Secondary Progressive Multiple Sclerosis

Source Neurology Advisor:

VANCOUVER, British Columbia — For the treatment of secondary-progressive multiple sclerosis (SPMS), NDC-1308−a small molecule that activates intracellular pathways for oligodendrocyte progenitor cell (OPC) differentiation−showed favorable pharmacokinetic properties and was safe in a mice study.  Read on.

Promising Phase 1 Trial Results of Stem Cell Therapy in Progressive MS Patients

Source Multiple Sclerosis Today:

Potentially groundbreaking research by the Tisch Multiple Sclerosis Research Center of New York (MSRCNY) will be presented on April 19 at the 68th American Academy of Neurology (AAN)Annual Meeting taking place in Vancouver, Canada. Dr. Saud A. Sadiq, director and chief research scientist at the Tisch center, will present results of a Phase 1 clinical trial of a stem cell therapy that showed promise in people with the progressive form of multiple sclerosis (MS).  Read on.

It's MS Awareness Week!

This week is MS Awareness Week!  MS National Therapy Centres have asked us to circulate a short survey to help raise awareness.  To complete their survey click here

New at BMSTC - APS Pain Therapy

Action Potential Simulation (APS) is a new pain relief treatment offered by BMSTC.

It had been piloted at the centre to help primarily with pain relief (e.g. MS hug and neuropathic pain in legs) but we have also trialled it for fatigue. It has been observed that some of our members have benefitted and others have not had any significant improvement.

The only side effect can be headache, which can usually be helped by drinking the recommended 1.5L of water. APS is not suitable for women during pregnancy or for people who have: pacemaker, epilepsy, active cancer, recent stroke, heart attack, Pulmonary Embolism or DVT. 

The recommended duration for treatment is 3 times a week for 8 weeks initially.

For further information about APS click here.

Contact us at BMSTC on 0118 901 6000 or email Henrietta@bmstc.org  to find out more! 

Tuesday, 19 April 2016

Please talk to our friendly physiotherapy team!

Our friendly physiotherapy team are always open to feedback from our members.

If you regularly attend for physiotherapy at BMSTC, please remember you can always approach the physios if you want to discuss your current treatment programme.

If have not had an assessment before or have not had a reassessment for a while and/or you feel your needs have changed – please do get in touch. You can book a assessment or reassessment by contacting reception on 0118 901 6000.

Thursday, 14 April 2016

NHS Talking Therapies available at BMSTC!

NHS Talking Therapies available at BMSTC on a Monday. The service is for people with MS, Partners and Carers who live in West Berkshire. Works wonders for depression and anxiety. If you are already on their waiting list you can be fast tracked. Simply call Talking Therapies direct on 0118 9769121 and tell them you are from BMSTC :0) 

For more information on their service click here.

Wednesday, 13 April 2016

New at BMSTC - Pelvic Floor Exercise Class for Women

Please note the Pelvic Floor Exercise Class for women will now start on the 4th May, 2.15 to 3.15pm. Please email henrietta@bmstc.org or call Henriette on 0118 901 6000 for more information.

Tuesday, 12 April 2016

Join us for Nordic Walking

Join us for Nordic Walking in Prospect Park

Mondays 13.30-14.30

Starting 9.5.16.

Min. of 6 participants needed.

To sign up or get more information contact Henriette on

0118 901 6000 or by e-mail Henrietta@bmstc.org

Monday, 11 April 2016

Focus Group ‘My experiences as a carer for someone with a neurological condition'

Invitation to take part in a Focus group

Monday 16th May 2016

For those with personal experience of:
‘My experiences as a carer for someone with a neurological condition'

A discussion between unpaid carers living in Wokingham, Reading and West Berkshire local authority areas (NHS Berkshire West) who look after another with a neurological diagnosis.

Arrivals from 13.45 hrs.
Focus group from14.00 – 1600 hrs

In a comfortable setting at Padworth (between Woolhampton and Theale)

To attend please contact John Holt on 01635 33582 johnmholtbsc@aol.com
Limited places, confirmed booking is essential, please.
Full details will be given about the venue when bookings are accepted.

Monday evening Yoga class at BMSTC - 7.00 pm to 8.30 pm resumes on Monday 4th April.

Why not try our Monday evening Yoga for MS classes 7.00 pm - 8.30 pm?

Free for our MS Members, but as always, please do make a donation if you can afford to do so. This helps us meet our costs and helps those who are unable to donate to attend.  Please do just come along and join in.

Dr Uddhava Samman has been teaching yoga for people with MS at the Centre for over 20 years.   This is a little more information about the benefits of yoga for MS from Uddhava:

"Each Yoga class includes a warm up to prepare for movement, followed by postures that gently stretch and strengthen the body. There is also breathwork and mindfulness meditation, if appropriate, and the class always ends with a relaxation.

The classes are tailored to fit the needs of the people who come and everyone is invited to do as much as feels comfortable for them. If someone wishes they can do part, or all, of the class in a chair.

Research studies have shown that Yoga improves the physical and mental well-being of people with MS. One study in 2013, for example, reported that after a 4 month Yoga programme for people with MS, they showed a ‘significant improvement in functional strength, balance and peak expiratory flow and a trend towards improvements in mental health and quality of life”.
A summary is provided here http://www.ncbi.nlm.nih.gov/pubmed/24165521

I have also found Yoga to be very good for releasing stress and people tell me that they feel much more relaxed after a Yoga class and their sleep is improved. When we stretch muscles we are not just releasing tension from the body but also from the mind.
Raised in Devon, I have been teaching Yoga in Reading for the past 20 years and whilst I teach general classes, I have specialised in teaching Yoga to people with MS. I am co-founder and Trustee of the Traditional Yoga Association, a registered charity based in Reading, which offers Yoga classes, workshops and Yoga Teacher Training courses."

For more information you can email Uddhava directly at uddhava@traditionalyoga.org or speak to Pippa on 0118 9016000.

Thursday, 7 April 2016

Reading Half Marathon 2016

A huge congratulations and thank you to everyone who took part in the Reading Half Marathon last Sunday, our runners and water station team were totally brilliant!

Congratulations Amy!

Congratulations to our physiotherapist, Amy, who completed her first half marathon at Reading Half Marathon and Green Park Challenge on Sunday!

We are all very proud of you.  It's not too late to show your support by sponsoring Amy here!

Share your experience of MS treatments

Source: MS Society

The National Institute for Health and Clinical Excellence (NICE) is looking at the future of the treatments currently available through the Risk Sharing Scheme. We need your help to make sure people with MS are at the heart of the process.  Read on.

The 1MSg Campaign

Our aim is to help encourage people with multiple sclerosis (MS) to ensure they are making informed decisions about their disease-management based on the latest facts and information. To do this, we are championing the benefits of regular engagement with MS-specialist services.   Read on.

Could you place one of our collection boxes out in the community?

Thanks to those of you who already recruit &/or service static collection boxes for the Centre.  Pubs, clubs, shops & local businesses collected nearly £2,000 in this way during 2015. In addition to raising valuable funds, the boxes help with raising awareness of our work to the local community. However, there is fierce competition for places &  we frequently lose sites when businesses change hands so more are needed! If you can place a box at a location known to you (pubs & chip shops seem to do particularly well!) &/or service it by collecting full boxes & supplying replacements, please let me or Kirsten know.  On receipt of a full box at the Centre, we will count it & send a thank you letter to the site, advising of the amount raised.

Thanks so much

Tracy J

Cardboard home boxes (CBHB) – a great way for anyone to raise money for BMSTC without leaving home!

Many thanks to all of you who have been collecting your loose change in BMSTC collection boxes (both plastic & cardboard) at home to raise funds for the Centre.  Last year nearly £2,000 was generated though these boxes, a great addition to our fundraising!  If anyone else can help in this way, please ask at Reception & we will be pleased to give/send you a box, either for yourself or a friend or family member.  We will count it for you & let you know how much you have raised!
Thanks so much
Tracy J

Wednesday, 6 April 2016