Wednesday, 22 June 2016

Designer Creates a Line of Jeans Specifically for Wheelchair Users

Source: The Mighty

Heidi McKenzie has always loved fashion.

As a child, she insisted on picking out her own outfits. As a teen, she designed her junior year prom dress with the help of her aunt. And as an adult, McKenzie is the mind behind an innovative new fashion line.

McKenzie studied fashion merchandising in the hopes of becoming a buyer for an apparel store. But after a 2007 car accident that left her a paraplegic at the age of 21, she discovered a new vision.  Read on.

New report calls for neurology care to be delivered closer to home

Source MS Trust:

The Thames Valley Strategic Clinical Network launches a new report (link is external) calling for improvements in neurological services provided in the community.

The report slams the current provision of care for people with long-term neurological conditions, describing it as unsatisfactory from all perspectives, including those of patients, carers and commissioners (the people who plan and buy services). It draws a picture of care that is centred around institutions rather than patients, and cautions that this lack of integrated care results in delayed access to expert advice, particularly in times of crisis.  Read on.

Boars Bridge Festival this weekend!

Come and join us at Boars Bridge Festival this weekend!

Tickets will be available on the gate:

£20 Weekend Ticket
£15 Saturday only Ticket
£10 Sunday only Ticket

There are some great performers lined up with the Mark Nelson Blues Trio headlining on Saturday night.

For more information see:

Four new risk genes associated with multiple sclerosis discovered

Source EurekAlert:

Scientists of the Technical University of Munich (TUM) and the Max Planck Institute of Psychiatry have identified four new risk genes that are altered in German patients with multiple sclerosis (MS). The results point to a possible involvement of cellular mechanisms in the development of the disease, through which environmental influences affect gene regulation. The research project was supported by the German Competence Network Multiple Sclerosis (KKNMS).  Read on.

AGM Presentation by Dr Claire Rice available on YouTube

Many thanks to everyone who came along to our AGM last week. We filmed our guest speaker, Dr Claire Rice, so we could share her fantastic presentation  "MS - Current understanding & research priorities" for those who were unable to attend the meeting.  To watch click here.

Myelination Relies on Mechanical Stimuli Like That Used for Bone Repair, Study finds.

Source Multiple Sclerosis News Today:

Researchers at the University of Buffalo’s Hunter James Kelly Research Institute (HJKRI) discovered that the cells that form myelin in the nervous system respond to mechanical stimulation by activating molecules from a specific pathway, which are transferred to the nucleus, triggering myelination.  Read on.

Rituximab Better than Fingolimod for Preventing Relapses in Multiple Sclerosis Patients.

Source MD
Preventing relapses for patients with highly active multiple sclerosis (MS) is more easily accomplished with rituximab than with fingolimod, according to findings published in the Annals of Neurology.   Read on.

Caroline Wyatt 'utterly overwhelmed' by support as she reveals she is stepping down from BBC reporting duties after multiple sclerosis diagnosis

Source BBC:
Caroline Wyatt, the veteran BBC war correspondent, is to step down from reporting duties after being diagnosed with multiple sclerosis.

The BBC announced yesterday that Wyatt, who has spent more than twenty years at the corporation, had battled with the symptoms of MS, which can include fatigue and impaired mobility, for a number of years, but had only recently been diagnosed with the condition.  Read on.

MS - New therapy but a dilemma for patients

Multiple sclerosis in the body's cells
Source BBC News:

There has been a widespread welcome for news that a new therapy involving stem cell transplants has halted or reversed the symptoms of advanced multiple sclerosis in a small number of patients. Read on.

Friday, 10 June 2016

Power Chair for Sale

One of our members has a Power Chair for sale:

Good working order and comes with battery charger. I have used indoors only but could be used outside. Wheel base 22 inches. Total width 23 inches. Black leather seat, very comfortable. I bought it 2nd hand originally and used it for about a year. Reason for selling is its too wide for my hallway and looking for smaller model. Machine would be around 3 - 5 years old. Haven't had any problems with it.

Free of charge with a donation to BMSTC - available from July. If you are interested please email

New treatment can 'halt' multiple sclerosis, says study

Source BBC:
Dr Emma Gray, who is head of clinical trials at the MS Society, said: "This type of stem cell transplantation is a rapidly evolving area of MS research that holds a lot of promise for people with certain types of MS.

"This treatment does offer hope, but it's also an aggressive procedure that comes with substantial risks and requires specialist aftercare. If anyone is considering HSCT we'd recommend they speak to their neurologist."  For full BBC article click here.