Please visit our new website and Pip's blog here:
http://www.bmstc.org/blog
Wednesday, 15 March 2017
Monday, 6 March 2017
Pelvic Floor Classes for Women at the Centre
A pelvic floor exercise class for women will start on the 27th April, 2.15 to 3.15pm.
The focus will be:
Please email either Henriette, henrietta@bmstc.org or Ligia, ligia@bmstc.org or call them on 0118 901 6000 for more information.
There is more information available from the MS Trust about the benefits of pelvic floor training to treat bladder symptoms click here!
The focus will be:
- Stress and Urge incontinence
- Functional pelvic floor training
- Healthy bladder advice for women.
Please email either Henriette, henrietta@bmstc.org or Ligia, ligia@bmstc.org or call them on 0118 901 6000 for more information.
There is more information available from the MS Trust about the benefits of pelvic floor training to treat bladder symptoms click here!
Friday, 3 March 2017
Disability benefits: Number 10 defends changes to PIPs
Source BBC:
Downing Street has defended plans to change access to disability benefits, saying that "nobody is losing out".
The government wants to reverse the effects of a court ruling which expands the number of people who can claim Personal Independence Payments.
The PM's official spokesman said the welfare system was a "strong safety net for those who are in need of it". Read on.
Downing Street has defended plans to change access to disability benefits, saying that "nobody is losing out".
The government wants to reverse the effects of a court ruling which expands the number of people who can claim Personal Independence Payments.
The PM's official spokesman said the welfare system was a "strong safety net for those who are in need of it". Read on.
Tuesday, 28 February 2017
#ACTRIMS2017 – There is Increased Evidence Linking Viruses to MS Risk
Source Multiple Sclerosis News Today:
Multiple sclerosis (MS) is thought to be caused by genetic factors, but environmental cues are increasingly recognized to have an impact on disease onset and development. One environmental factor suggested to play a role in MS is infectious agents, such as viruses. Now, different teams of scientists have explored the potential link between different viruses and the risk for MS. Read on.
Multiple sclerosis (MS) is thought to be caused by genetic factors, but environmental cues are increasingly recognized to have an impact on disease onset and development. One environmental factor suggested to play a role in MS is infectious agents, such as viruses. Now, different teams of scientists have explored the potential link between different viruses and the risk for MS. Read on.
Caroline Wyatt: MS 'brain fog' lifted after stem cell treatment
Source BBC:
BBC journalist Caroline Wyatt has spoken of how the "brain fog began to lift" after she had pioneering treatment for multiple sclerosis (MS).
The former BBC defence correspondent was deemed unsuitable for an NHS trial and paid $60,000 (£48,000) for a stem cell transplant in Mexico in January.
Wyatt, 49, told BBC Radio 4's PM programme that she was "feeling better than I have done in a long time". Read on.
BBC journalist Caroline Wyatt has spoken of how the "brain fog began to lift" after she had pioneering treatment for multiple sclerosis (MS).
The former BBC defence correspondent was deemed unsuitable for an NHS trial and paid $60,000 (£48,000) for a stem cell transplant in Mexico in January.
Wyatt, 49, told BBC Radio 4's PM programme that she was "feeling better than I have done in a long time". Read on.
Unexpected changes to PIP assessment
Source MS Society:
On Thursday night the Government announced surprise changes to the Personal Independence Payment (PIP) assessment.
We didn't expect these changes and are working hard to understand their potential impact. They follow proposals last year, which we and other disability charities sent a strong message against. Read on.
On Thursday night the Government announced surprise changes to the Personal Independence Payment (PIP) assessment.
We didn't expect these changes and are working hard to understand their potential impact. They follow proposals last year, which we and other disability charities sent a strong message against. Read on.
Calling all Nationwide Building Society customers
Calling all Nationwide Building Society customers – vote for us in branch across the area we may receive a wonderful £1,000 donation.
Vote for us in the following Nationwide branches:
Basingstoke, Bracknell, Caversham, Crowthorne, Reading (Broard Street), Reading (Station Road), Tilehurst, Wokingham, Woodley
Money Box Live: Self-employment and disability
Source BBC:
There are a record 5m self-employed workers in the UK.They account for the 45 per cent of the growth in total employment since 2008. Analysis of the figures show that 16% of working disabled people identify as being their own boss, compared with 13% of the non-disabled population. Read on and listen here.
There are a record 5m self-employed workers in the UK.They account for the 45 per cent of the growth in total employment since 2008. Analysis of the figures show that 16% of working disabled people identify as being their own boss, compared with 13% of the non-disabled population. Read on and listen here.
Wednesday, 22 February 2017
Mouse model helps explain why some patients with multiple sclerosis have seizures
Source EurekAlert:
RIVERSIDE, Calif. - Multiple sclerosis (MS) is an autoimmune disease of the central nervous system that affects nearly 2.3 million people worldwide. MS is triggered when the immune system attacks the protective covering around nerve fibers, called the myelin sheath. The "demyelination" that follows damages nerve cells and causes impaired exchange of information between the brain and body as well as within the brain itself. Read on.
RIVERSIDE, Calif. - Multiple sclerosis (MS) is an autoimmune disease of the central nervous system that affects nearly 2.3 million people worldwide. MS is triggered when the immune system attacks the protective covering around nerve fibers, called the myelin sheath. The "demyelination" that follows damages nerve cells and causes impaired exchange of information between the brain and body as well as within the brain itself. Read on.
New voice for disabled consumers
Source BBC:
Disabled people will get a fresh chance to make their concerns heard as consumers, thanks to a government initiative to be announced on Tuesday.
Eleven sector champions are being appointed to help make different areas of business more accountable to the disabled. Read on.
Disabled people will get a fresh chance to make their concerns heard as consumers, thanks to a government initiative to be announced on Tuesday.
Eleven sector champions are being appointed to help make different areas of business more accountable to the disabled. Read on.
HSCT could have long-term benefits
Source MS Society:
HSCT could have long-term benefits for some people with MS, according to the results of a large study that we co-funded.
After five years, progression had stopped in just under half of the 239 people eligible for the treatment. Read on.
HSCT could have long-term benefits for some people with MS, according to the results of a large study that we co-funded.
After five years, progression had stopped in just under half of the 239 people eligible for the treatment. Read on.
MS Society Campaign: Our Green Paper response: some people with MS can't work, don't put more pressure on them
Source MS Society:
We’re really concerned about changes to disability benefits proposed in the Government's Green Paper on work, health and disability. And we let them know in our detailed response.
We’re urging them to scrap plans to introduce ‘mandatory activity’ for people in the support group of Employment and Support Allowance (ESA). These plans could force people, already assessed as too unwell to work, to prepare for work or risk facing cuts to their benefits. Read on.
We’re really concerned about changes to disability benefits proposed in the Government's Green Paper on work, health and disability. And we let them know in our detailed response.
We’re urging them to scrap plans to introduce ‘mandatory activity’ for people in the support group of Employment and Support Allowance (ESA). These plans could force people, already assessed as too unwell to work, to prepare for work or risk facing cuts to their benefits. Read on.
Berkshire Carers Hub
Are you, or is someone you know, providing much-needed care for a loved one?
Get free access to a range of support and services – right when you need it most.
Carers Trust provides timely, personalised information and support via the Reading & West Berkshire Carers Hub to make caring for a loved one easier. Read on.
Tuesday, 21 February 2017
Unwanted Jewellery
If you have any unwanted jewellery please could you bring it to the Centre for our Link Group to sell at various stalls and our Summer Fair. Thank you!
Friday, 10 February 2017
APS Pain Therapy available at BMSTC
Action Potential Simulation (APS) is a new pain relief treatment offered by the Berkshire MS Therapy Centre (BMSTC), Reading.
It had been piloted in the Centre with people with MS to help primarily with pain relief (e.g. MS hug and neuropathic pain in legs) but we have also trialled it for fatigue. It has been observed that some of our members have benefitted and others have not had any significant improvement.
The only side effect can be headache, which can usually be helped by drinking the recommended 1.5L of water.
APS is not suitable for women during pregnancy or for people who have: pacemaker, epilepsy, active cancer, recent stroke, heart attack, Pulmonary Embolism or DVT. The recommended duration for treatment is 3 times a week for 8 weeks initially.
For further information about APS please click here. Contact us at BMSTC on 0118 901 6000 or email henrietta@bmstc.org to find out more!
It had been piloted in the Centre with people with MS to help primarily with pain relief (e.g. MS hug and neuropathic pain in legs) but we have also trialled it for fatigue. It has been observed that some of our members have benefitted and others have not had any significant improvement.
The only side effect can be headache, which can usually be helped by drinking the recommended 1.5L of water.
APS is not suitable for women during pregnancy or for people who have: pacemaker, epilepsy, active cancer, recent stroke, heart attack, Pulmonary Embolism or DVT. The recommended duration for treatment is 3 times a week for 8 weeks initially.
For further information about APS please click here. Contact us at BMSTC on 0118 901 6000 or email henrietta@bmstc.org to find out more!
We are looking to recruit a Junior Physiotherapist
We are seeking an enthusiastic physiotherapist who wants to make a difference to the lives of
people living with MS.
You will be working in a purpose-built, independent Therapy Centre with a dedicated team
of physiotherapists providing assessment, treatment and management, on an out-patient
basis, for our members.
We are based at Bradbury House, just off Oxford Road in Reading, Berkshire. Here we have a fully equipped gym with specialist equipment, the only oxygen chamber open for people with MS in Berkshire, numerous therapy rooms and plenty of parking. Most importantly we have a friendly atmosphere and a lot of laughter.
For more more information about the role please see the Job description here.
Download application form here.
For more information about our MS Therapy Centre visit www.bmstc.org
Closing date for applications 10th March 2017 with interviews week commencing 15th March 2017.
Please feel free to share this information with anyone you know who maybe interested.
For more more information about the role please see the Job description here.
Download application form here.
For more information about our MS Therapy Centre visit www.bmstc.org
Closing date for applications 10th March 2017 with interviews week commencing 15th March 2017.
Please feel free to share this information with anyone you know who maybe interested.
We need your help
We are looking for people to share their MS experience with us. So many people tell us how scary it is when they are first diagnosed and we want to show people they are not alone.
Would you be happy to share your story with us? If so please email samantha@bmstc.org for more details.
Have you heard of trigeminal neuralgia?
Source: MS Trust
Have you heard of trigeminal neuralgia? It's a type of severe neck pain which can cause stabbing or burning sensations down one side of the face. Research has shown that people who have MS are more likely to experience it. Read on.
Have you heard of trigeminal neuralgia? It's a type of severe neck pain which can cause stabbing or burning sensations down one side of the face. Research has shown that people who have MS are more likely to experience it. Read on.
Thursday, 9 February 2017
How Fast Will Multiple Sclerosis Develop?
Source: Medical Daily
A simple blood test can tell which type of multiple sclerosis a person has, according to study in scientific reports. It touts the first known sign in the blood that indicates the central nervous system disease, in which communication between the brain and the rest of the body breaks down, creating motor problems and muscle weakness, among other symptoms Read on.
A simple blood test can tell which type of multiple sclerosis a person has, according to study in scientific reports. It touts the first known sign in the blood that indicates the central nervous system disease, in which communication between the brain and the rest of the body breaks down, creating motor problems and muscle weakness, among other symptoms Read on.
Free Webinar for people living with Progressive MS
Source: National MS Society
Join a live webcast on February 13, featuring Alliance Collaborative Network Award recipient Dr. Francisco Quintana from Harvard University/Brigham and Women’s Hospital. Dr. Quintana is leading research to identify and evaluate drugs that protect the brain from damage in progressive MS. (Note: 4pm GMT) Read on.
Join a live webcast on February 13, featuring Alliance Collaborative Network Award recipient Dr. Francisco Quintana from Harvard University/Brigham and Women’s Hospital. Dr. Quintana is leading research to identify and evaluate drugs that protect the brain from damage in progressive MS. (Note: 4pm GMT) Read on.
Caroline's HSCT stem cell transplant for MS 2017
Source: MS Society
BBC journalist Caroline Wyatt, who lives with MS, has been sharing her experiences of travelling abroad for HSCT and the challenges and emotions she’s faced. It’s a moving read: https://carolinewyatt.com/
BBC journalist Caroline Wyatt, who lives with MS, has been sharing her experiences of travelling abroad for HSCT and the challenges and emotions she’s faced. It’s a moving read: https://carolinewyatt.com/
Neuropathic pain - the 'invisible illness'
Source MS Trust:
The man opposite you on the train has one leg in plaster and one arm in a sling. Each time he moves, he grimaces with pain. Few of us could fail to have a degree of sympathy for his suffering. The apparently normal man seated next to him may be experiencing excruciating burning and stabbing pain in his legs and feet as a result of his MS. Who is to know, though? There is nothing to see to explain his pain. Neuropathic pain is truly an invisible illness.
The man opposite you on the train has one leg in plaster and one arm in a sling. Each time he moves, he grimaces with pain. Few of us could fail to have a degree of sympathy for his suffering. The apparently normal man seated next to him may be experiencing excruciating burning and stabbing pain in his legs and feet as a result of his MS. Who is to know, though? There is nothing to see to explain his pain. Neuropathic pain is truly an invisible illness.
First blood biomarker for multiple sclerosis discovered
Source New Atlas:
Although there is no known cure for multiple sclerosis (MS), there are treatments that can help prevent new attacks and improve function after an attack. However, there are three subtypes of the disease and determining this, as well as the appropriateness and effectiveness of a patient's current treatment, involves an array of expensive, time-consuming tests. Now, after a search lasting 12 years, an international team of researchers has identified a biomarker that would allow MS subtypes to be determined with a simple blood test. Read on.
Stem cell transplants may induce long-term remission of multiple sclerosis
Source: NIH Gov
New clinical trial results provide evidence that high-dose immunosuppressive therapy followed by transplantation of a person's own blood-forming stem cells can induce sustained remission of relapsing-remitting multiple sclerosis (MS), an autoimmune disease in which the immune system attacks the central nervous system. Read on.
Vote for us at Waitrose Henley
It's February and the lovely colleagues at Waitrose Henley have chosen the Henley MS Support Group (part of BMSTC) as one of their green token charities.
If you are shopping there please vote for us and ask your friends to use their green tokens too. Happy shopping!
Woof, meow, tweet…the benefits of having pets in our MS life
Source: Multiple Sclerosis Net
Dog, cat, chinchilla, hamster, ferret, fish, bearded dragon, parakeet, pig, monkey – whatever your choice, pets really make us feel good, better even, as we live with chronic illness and disability. Not only can they provide physical assistance, they also warm our hearts and make living with MS a bit easier. Read on.
Tuesday, 7 February 2017
Work, Health and Disability: Improving Lives – Consultation
Source DWP:
DWP have proposed new plans to help more people with long
term conditions reap the benefits of work and improve their health. The plans
are set out in the governments Work, Health and Disability
Green Paper. It outlines how disability or a health condition should not
dictate the path a person is able to take in line – or in the workplace. What
should count is a person’s talents and their determination and aspiration to
succeed.
The government is seeking
views on what it will take to transform employment prospects for disabled
people and people with long-term health conditions.
This consultation seeks views on how we can halve the
disability employment gap. Despite the current record-breaking labour market,
4.6 million disabled people and people with long-term health conditions are out
of work. Less than half (48%) of disabled people are in employment, compared to
80% of the non-disabled population.
Topics in this consultation
include the role of employers and work coaches, improvements to the welfare
system, investing in innovative services, occupational health support and
changing the culture around work and health.
The Department for Work and
Pensions and the Department of Health are keen to hear views from all
interested parties, including employers, disabled people and disability organisations.
The
consultation runs until 17th February 2017.
Best
Regards,
Sharmin
Khan |
Partnership Manager | Department for Work and Pensions | Weybridge Fortune
House | 7-13 Monument Hill | Weybridge | Surrey | KT13 8RX | Telephone 01932
748067 | VPN 787348067 | Mobile 07780 338735 | @WeybridgeJCP @BSSJCP on Twitter
| www.gov.uk | Please consider the
environment before printing |
Important: For security reasons DWP cannot discuss personal information with you over
email. DWP will never ask you to send any usernames, passwords, personal,
health/medical or bank account information via email and we will not be able to
process such information if you do send it – it will be deleted. You must tell
us about any changes that may affect your circumstances by post or telephone.
Monday, 30 January 2017
Did you know people with MS have a greater risk of developing thinning of the bones (osteoporosis)
Source MS Trust:
People with MS have a greater risk of developing thinning of the bones (osteoporosis). As there are often no symptoms, it may only be discovered when you break a bone in a minor accident. MS nurses Pauline Shaw and Debbie Quinn put together these tips for keeping your skeleton healthy and strong. Read on.
People with MS have a greater risk of developing thinning of the bones (osteoporosis). As there are often no symptoms, it may only be discovered when you break a bone in a minor accident. MS nurses Pauline Shaw and Debbie Quinn put together these tips for keeping your skeleton healthy and strong. Read on.
Hollyoaks’ Nancy Osborne faces her MS diagnosis
Source MS Society:
This week Channel 4 soap opera Hollyoaks will be broadcasting a new storyline where a main character, Nancy Osborne, finds out she has MS. Read on.
This week Channel 4 soap opera Hollyoaks will be broadcasting a new storyline where a main character, Nancy Osborne, finds out she has MS. Read on.
Fresh evidence that DWP bars email communication from disabled claimants
Source Disability News Service:
Fresh evidence has emerged that the Department for Work and Pensions (DWP) has refused to allow benefit claimants to communicate via email, despite its claims that it allows disabled people with “valid reasons” to do so.
Last week, one disabled PIP claimant, Mark Lucas, told how he was taking legal action against DWP for refusing to allow him to communicate with its civil servants via email as a reasonable adjustment under the Equality Act. Read on.
Fresh evidence has emerged that the Department for Work and Pensions (DWP) has refused to allow benefit claimants to communicate via email, despite its claims that it allows disabled people with “valid reasons” to do so.
Last week, one disabled PIP claimant, Mark Lucas, told how he was taking legal action against DWP for refusing to allow him to communicate with its civil servants via email as a reasonable adjustment under the Equality Act. Read on.
New signs on disabled toilets in Tesco stores to recognise ‘invisible’ illnesses
Tesco changing the disabled toilet signs in over 700 stores is a fantastic way to raise awareness. It will help people understand that you can’t always see someone’s disability, whatever it may be. For many people like me this is a little help that will make a big difference. Read on.
Friday, 27 January 2017
Campaigners welcome RBH apology and wide support for hydrotherapy but warn against any gaps in provision
Representatives
from groups campaigning to save the Royal Berkshire Hospital hydrotherapy pool
from closure including; Arthritis Matters, REACH, MS Society, Berks DPAC,
Berkshire MS Therapy Centre, Peapods, Reading Fibromyalgia Support Group,
Parkinson’s Society and Reading Families Forum, were out in force last night
(Jan 25th) to lobby hospital governors and management. They had submitted a
series of public questions seeking a public apology for statements made
denigrating the effectiveness of the only treatment that brings pain relief and
mobility to many with disabilities and chronic pain conditions. They also
pressed for a formal acknowledgement of the 'proven clinical benefits' of
hydrotherapy.
On
behalf of the RBH management, who have already agreed to defer the planned pool
closure until June, hospital chair Graham Sims apologised for the way the issue
had been handled and for any offence caused to patients and their families. New
Chief Executive Steve McManus put on record the value of hydrotherapy and
confirmed his intention to work with the campaigners on looking at how the
service can best be provided in the Reading area. However, neither he Mr
Sims were able to confirm that there would be no gaps in provision to patients
after June. This prompted former Reading West MP and MS Therapy Centre patron
Martin Salter to write to Mr Sims demanding assurances.
In
his letter Mr Salter described the statements by the RBH management as "an
excellent basis upon which to move forward" but warned any gap in the
hydrotherapy service would be 'a deal breaker' in any future cooperation.
He
wrote:
However,
there remains considerable unhappiness at the failure to give us a categorical
assurance last night that there will be no gaps in provision. With the best
will in the world there is no way any alternative hydrotherapy service is
likely to be up and running by the end of June which means that the current
pool must be kept operational to provide treatment and pain relief to those who
need it. This is a deal breaker - make no mistake about that - but it is easily
resolvable by either you or Steve issuing that assurance.
I
hope you will be able to do this swiftly so that we can all move on and
consolidate the excellent progress that was made last night.
This
was echoed by Reading West MP Alok Sharma who added:
"I
am looking forward to the consultation process by the hospital as it seeks
detailed views about the hydrotherapy pool and the campaigners Stakeholder
Engagement Group will look to work closely with CEO Steve McManus and his team.
However it is imperative that, whatever solution is agreed for continuing to
deliver a hydrotherapy service, there must be no time gap in provision. This is
a vital service which many patients depend on and I would welcome a formal
commitment from the hospital that a gap in provision will be
avoided."
The
campaign received a further boost this week when Reading Borough Councillors
unanimously approved a strongly worded motion opposing the planned closure.
Chair
of the Council's Health & Wellbeing Board, Councillor Graeme Hoskin said:
"
I was pleased to take a motion to Full Council meeting this Tuesday where
Reading Borough Council unanimously expressed its opposition to the closure of
the hydrotherapy pool and our belief that the resulting impact on the health of
users of the pool will far outweigh any short-term financial savings to the
hospital We also welcome the extension of proposed closure to the end of June.
This will allow the Trust time to engage with stakeholders, current users of
the pool and partners, including the local authority and the NHS Clinical
Commissioning Groups."
Tuesday, 24 January 2017
Citizens Advice are hosting a workshop on reducing the cost of energy bills and saving energy in the home
As part of this year’s
Warm Homes Campaign, Citizens Advice Reading are hosting a free workshop
giving practical advice on reducing the cost of energy bills and saving energy
in the home.
The event is open to anyone working with people struggling to heat their homes as well as to carers and anyone with an interest in reducing their own energy bills.
The event will be made up of a number of practical and interactive sessions covering topics such as
Friday 10th February 2017
10am - 2pm
Council Chamber, Reading Borough Council, Civic Offices, Bridge Street
Lunch and refreshments will be provided free of charge.
Booking is essential – to confirm your place, please email energy@readingcab.org.uk
Sessions will be run by Citizens Advice Reading, Draught busters and Winter Watch.
Please feel free to forward this on to your colleagues and networks.
Hope to see you on the 10th.
The event is open to anyone working with people struggling to heat their homes as well as to carers and anyone with an interest in reducing their own energy bills.
The event will be made up of a number of practical and interactive sessions covering topics such as
- Energy efficiency – hints and tips on draught
proofing, dealing with damp and condensation and other energy saving ideas
- Finding the best deal – demonstrations and
opportunities to use the internet to find the best price for gas and
electricity
- Help and support available for consumers,
with a local focus
Friday 10th February 2017
10am - 2pm
Council Chamber, Reading Borough Council, Civic Offices, Bridge Street
Lunch and refreshments will be provided free of charge.
Booking is essential – to confirm your place, please email energy@readingcab.org.uk
Sessions will be run by Citizens Advice Reading, Draught busters and Winter Watch.
Please feel free to forward this on to your colleagues and networks.
Hope to see you on the 10th.
Wednesday, 18 January 2017
Press Statement from the Save the RBH Hydrotherapy Pool Campaign
Announcement of
Hydrotherapy Pool Closure Postponement
Campaigners from Save
the RBH Hydrotherapy Pool Campaign gave a guarded welcome to the announcement
from the new hospital Chief Executive Steve McManus that plans to close the
pool had been put on hold until June to give time to address "questions
raised by MPs and local patient representative groups" and to "engage
with existing users of the facility."
The campaign is supported
by Arthritis Matters, REACH, MS Society, Berks DPAC, Berkshire MS Therapy
Centre, Peapods, Reading Fibromyalgia Support Group, Parkinson’s Society and
Reading Families Forum.
The former Reading West MP
Martin Salter, who is patron of the MS Therapy Centre said:
'Obviously we want to
thank Steve McManus for listening to us and seeking to put right the wrongs of
his predecessor. It is clearly no coincidence that they announce the
postponement on the day we produce a dossier taking apart their flimsy case for
closing a much needed medical facility.
They say they want to
fully address the questions that have been raised by ourselves and the MPs and
to properly engage with users and their representatives but for this to happen
in any meaningful way there are things we will need to get straight first at
our meeting with the hospital management of Friday.
1) There really should be a public
apology to users of the pool and others suffering chronic pain conditions for
describing hydrotherapy as a 'feel good service'. This was deeply insulting and
has caused anger and mistrust which is no basis for future joint working.
2) They must accept that hydrotherapy
does have 'proven clinical benefits' as set out in our dossier and evidenced in
their own statements.
3) We should all avoid prolonging the
situation unnecessarily and causing uncertainty and distress to users who rely
on the service. The matter should be resolved as quickly as possible.
4) The charities and patient groups
are entering these consultations on the basis that it is about HOW we deliver
an NHS hydrotherapy service in Reading not IF we have one.
We expect the pool to
remain fully open throughout this process and for the RBH to improve their
management of the facility. That said, we are looking forward to a constructive
meeting with Mr McManus and are grateful to Alok Sharma MP for organising the
delegation. "
Kim Seabrook, Chair of
Arthritis Matters Reading added:
"As we have made clear throughout our campaign, which
has seen over 3000 register their disgust at the proposed closure, hydrotherapy
is a beneficial treatment that works across generations and across
diseases. It enables people to regain
their mobility and independence, and manage chronic conditions such as
Arthritis, Parkinson’s and Multiple Sclerosis with fewer visits to GPs and
hospitals. We will keep on fighting to keep this valuable facility permanently
open for everyone in the local community. We are not interested in any
temporary postponement. "
ENDS
1) PRESS STATEMENT from
RBH 17.1.17
The Board of the
Royal Berkshire NHS Foundation Trust has
agreed to defer the closure of its hydrotherapy pool until 30 June 2017. During this period the pool will continue to
be fully operational; the Trust will
clarify its Clinical and Estates strategies in the relation to the hydrotherapy
service and work with local partners to address questions raised by MPs and
local patient representative groups. The Trust will also engage with existing
users of the facility. At the same
time it will work with local Clinical Commissioning Groups, other NHS partners
and the local authority to explore future commissioning intentions for the hydrotherapy
service.
2) The dossier ‘Why the
RBH should keep the hydrotherapy pool open – the case against closure’ can be found here: http://bit.ly/2jqEc1J
Monday, 16 January 2017
Read the excellent case against the closure or the hydrotherapy pool at Royal Berkshire Hospital
Our Patron, Martin Salter is among the campaign group set up to protest against the planned closure of the hydrotherapy pool at Royal Berkshire Hospital.
Read their excellent case against the closure here.
Introducing Tricia - our new Massage Therapist joining us in April
Hi
everyone – My name is Tricia Carter and I will soon be joining the team at the
MS Therapy Centre, so I’d like to take this opportunity to briefly introduce
myself.
Prior to studying and completing my
training in Anatomy, Physiology & Holistic Massage, I worked in Corporate
Business for over 16 years. However,
massage was always my passion and after qualifying, I set up Health in Harmony in 2005. I am an ITEC licensed therapist, fully
insured and a professional member of the Complementary Therapists Association.
I believe massage therapy
plays an important part in our health and wellness. In the stressful world we
live in today, I believe massage should be regarded as part of an optimal
health regimen. As a Massage Therapist
and an Aromatherapist I can offer a variety of treatments tailored to your
needs. Please visit my website for
details of the treatments I offer: www.health-in-harmony.co.uk.
At the start of our first
session, we will have a 10-15 minute consultation where we can get to know each
other. I can find out about your health,
the elements I should be aware of, and your preferred areas of focus. I can then use this information to plan your
treatment which will be carried out using various techniques and essential oils
as required. I’m really looking forward
to meeting you all soon. Cost £15.00 per session paid directly to Tricia.
Thursday, 12 January 2017
Hydrotherapy Pool Campaign Update
We
are very pleased with the support that local politicians of all parties have
given to the hydrotherapy pool campaign. It's been much appreciated by the
campaign group and we are particularly pleased with the excellent letter from
my successor, Alok Sharma MP to the new hospital chief executive Steve McManus.
Reading
East MP Rob Wilson is also onside and has posted statements on his website and
Facebook page including this recent update:
"Essentially,
I think that the Trust has handled this situation poorly. It should now seek to
engage immediately with campaigners and service-users and back away from its
current position by undertaking a re-evaluation of the closure plan. With a new
Chief Executive, this is the perfect opportunity to reassess."
Alok
is organising a delegation to meet the RBH management from the various
charities and patient groups that currently use the pool. This is taking place
on Friday 20th January and I will be attending to represent the MS Therapy
Centre and to give some background to the issue.
As well as our two Conservative MPs Reading's Labour Councillors have been strong supporters with a number turning up for our recent petitioning session in Broad St. They are preparing to pass a resolution at the Council meeting later this month condemning the closure.
I've also been invited to ask a public question at the next meeting of the Reading borough Council's Health and Well Being panel on Fri 27th which will be another opportunity to highlight the issue.
We are petitioning again in Broad St Mall on Friday 13th Janaury from 11am to 1pm and next week we will be publishing a comprehensive dossier dismantling the hospital's case for closure. This will be sent to all hospital governors ahead of their Council of Governors meeting on January 25th where we are hoping to begin the process of getting the closure plans overturned.
If you would
like to write to the governors expressing your opposition to the planned
closure of the hydrotherapy pool you can find their details here:
To make
things a little easier I've drafted some text that can be used in any emails to
the RBH governors but obviously it's good if people use their own words as
well.
" Do you recognise the extent of public anger and concern at the decision to close the hydrotherapy pool at the Royal Berkshire Hospital which provides treatment, rehab and relief for disabled people, those recovering from stokes or neuro surgery, sufferers of chronic pain conditions including arthritis, fibromyalgia, muscular dystrophy, Parkinson's, ankylosing spondylitis as well degenerative diseases such as MS? Since this decision was taken without any consultation with patients groups, the local community or even the Hospital's Council of Governors and the announcement has been marked by misinformation and contradictory statements from the Hospital Trust can I urge you to vote for the suspension of the closure process and the opening up of a meaningful dialogue with clinicians and patients on finding a way forward."
" Do you recognise the extent of public anger and concern at the decision to close the hydrotherapy pool at the Royal Berkshire Hospital which provides treatment, rehab and relief for disabled people, those recovering from stokes or neuro surgery, sufferers of chronic pain conditions including arthritis, fibromyalgia, muscular dystrophy, Parkinson's, ankylosing spondylitis as well degenerative diseases such as MS? Since this decision was taken without any consultation with patients groups, the local community or even the Hospital's Council of Governors and the announcement has been marked by misinformation and contradictory statements from the Hospital Trust can I urge you to vote for the suspension of the closure process and the opening up of a meaningful dialogue with clinicians and patients on finding a way forward."
All
in all the campaign is going well but please keep sending those emails, writing
to the local papers, getting signatures on the petition and spreading the word
amongst your friends and colleagues.
Many thanks
Martin Salter
Patron
Berkshire
MS Therapy CentreNEW! Footcare now available every other Wednesday, Thursday and Friday
Ruth Best is extending her Footcare service to include Wednesdays from the 8th February 2017.
Appointments are available every other Wednesday, Thursday and Friday and can be booked at reception or by calling 0118 901 6000.
Healthy feet play a huge role in how you feel but sometimes having MS can make it difficult caring for them in a way you would like. Ruth will leave you with your feet feeling wonderful and offer advice on taking care of them.
This services is free for our MS Members but we warmly welcome donations.
Researchers Identify 2 Cytokines Responsible for Chronic Flares in Autoimmune Diseases
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MS Patient’s Pick of the Week’s News: Diet and Exercise, Tolerability, CHANGE-MS and More
Multiple Sclerosis News Today, pick of the week's news: Diet and Exercise, Tolerability, CHANGE-MS and more. Read on.
Fusion Protein, CGEN-15001, Shows Ability to Restore Immune Balance in Mice with MS
Compugen has reported new and promising results from studies on animal models of multiple sclerosis (MS) that support its lead drug candidate, CGEN-15001, as a potential treatment for a variety of autoimmune diseases, including MS. Read on.
Reading School of Pharmacy are looking for people with MS who have experience of falls.
The Reading School of Pharmacy is running a short workshop on people with experience of falls for our 4th year pharmacy students. We're looking for participants with Multiple Sclerosis who would be happy to share their experience of falls with our students. The workshop will be held from 10.00 until 11.00 on the 16th of February at our Whiteknights campus - please contact Patrick Lewis p.a.lewis@reading.ac.uk if you are interested in taking part or would like more information.
Unwanted Christmas Gifts?
A huge thank you to everyone who has donated some of their Christmas gifts this week. If you received things that you will not use please donate them to the Centre. Rather than allowing them to get covered in dust we will find them a loving home and support the local MS community.
Berks Wheelchair Rugby Taster Sessions Dates Announced
The Berkshire Banshees - a brand new wheelchair rugby club based in Berkshire is set to hold a number of 'taster sessions' aimed at recruiting new members to the club and sport. The sessions are open to all physically disabled potential players - male or female - aged 16 or older. Read on.
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